At the Autism Research Trust we are committed to protecting your privacy. This policy has been written in accordance with the Data Protection Act 1998.

If you have any questions regarding our management of your personal data please contact:

Charlotte Anderson
The Autism Research Trust
19-21 Cookridge Street
Leeds LS2 3AG

Email: [email protected]

1. How do we collect information?

We collect personal information from you when you submit a form, register with the website, make a donation to us or otherwise provide us with personal information.
We may also receive information about you from third parties, for example fundraising sites like Just Giving or Virgin Money Giving. These independent third parties will only do so when you have indicated that you wish to support the Autism Research Trust. Please check their privacy policy to understand how they keep your data.

2. What information do we collect?

The types of information collected might include: names, date of birth, e-mail address, postal address, telephone number.  

3. How do we use this information?

We will use your personal information to provide you with the services, products or information you have requested, for administration purposes and to further our charitable aims, including for fundraising activities. We may need to share your information with our service providers, associated organisations and agents for these purposes.
We only use your personal information for direct marketing purposes if we are allowed to do this by law or if we have your consent.

Your data may also be available to our website provider to enable us and them to carry out analysis and research on demographics, interests and behaviour of our users and supporters to help us gain a better understanding of them to enable us to improve our services. This may include connecting data we receive from you on the website to data available from other sources. Your personally identifiable data will only be used where it is necessary for the analysis required, and where your interests for privacy are deemed to outweigh their legitimate interests in developing new services for us. In the case of this activity the follow will apply:

  1. Your data will be made available to our website provider
  2. The data that may be available to them include any of the data we collect as described above.
  3. Our website provider will not transfer your data to any other third party, or transfer your data outside of the EEA.
  4. They will store your data for a maximum of 7 years.
  5. This processing does not affect your rights under sections 7 and 8 of this privacy policy

4. How do we protect personal information?

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.

5. Will we disclose the information we collect to outside parties?

We will never pass on your information to third party organisations without your express permission other than for the purposes as described above.

We may have to disclose your information if required to do so by law.

6. Your consent

By providing us with your personal data, including sensitive personal data such as on your health, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement.


You also consent to our transferring your information to countries or jurisdictions which do not provide the same level of data protection as the UK, if necessary for the above purposes. If we do make such a transfer, we will, if appropriate, put a contract in place to ensure your information is protected.

7. Withdrawing consent

You can change or withdraw your consent for us hold or to use your personal data for the purposes set out above by contacting us at the address above.

8. Right of access

You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected.

9. Changes

If your personal details change, please help us to keep your information up to date by notifying us.
You can do this by:
- emailing [email protected]
- posting your changes to us at the address above.

We reserve the right to amend this privacy statement. If we do so, we will post notice of the change on our website and you will be deemed to have accepted such changes.